Rett Sibling Scholarship 

Supporting siblings in the Rett syndrome community as they pursue their dreams in higher education.

Inspired by the Strength of Siblings

Families affected by Rett syndrome navigate many challenges, from medical care to logistics to financial strain. Siblings often fall in the middle, helping parents with caregiving and being a loving, supportive sibling—all while facing obstacles to their own goals.

The Rett Sibling Scholarship, sponsored by Acadia Pharmaceuticals Inc., aims to shine a light on these often unsung heroes of the Rett community.

We are awarding 10 scholarships of $5,000 to eligible siblings of individuals living with Rett syndrome for the 2024-2025 academic year. Applications are open to eligible siblings who meet program terms and conditions.

Process and Timeline 

Applications for the Rett Sibling Scholarship are submitted online. You’ll need to provide a variety of materials such as academic transcripts and info on activities, goals, and family circumstances, as well as submit an original essay.

The process is fully administered by International Scholarship and Tuition Services (ISTS), Inc., a firm that specializes in managing sponsored scholarship programs. For the 2024 program, 10 recipients, selected by an independent review committee, will each be awarded $5,000.

Submission of an application is not a promise of award. Program terms and conditions apply. Acadia reserves the right to change, discontinue, or cancel this program at any time without notice.

Get Updates 

Sign up to receive email updates on the Rett Sibling Scholarship, community resources, news, services and programs that Acadia Pharmaceuticals offers or sponsors.


Key Dates 


Application period opens 

October 4, 2023 

Final application deadline 

January 31, 2024 

Applications under review 

February – March 2024 

Recipients notified 

April 2024 

Scholarship funds issued

August 2024

How to Apply 

The 2024 application period is now closed and applications are under review. Good luck to the applicants! Scholarship recipients will be notified in April and announced later this summer.

Stay Updated

Scholarship FAQ

Here’s a quick overview of key points; for full details on application requirements, the online submission process, full terms and conditions, and more, download the Rett Sibling Scholarship FAQ (PDF).

The scholarship is open to U.S. residents attending school in the U.S. who have or had a sibling diagnosed with Rett syndrome. The applicant will be required to submit attestation of the sibling’s diagnosis, but no personal medical information will be requested/required. The diagnosed sibling does not need to be on an Acadia therapy, and treatment status is not considered at all in scholarship selection. Employees of Acadia and their immediate family members are not eligible to apply.

The program is open to students pursuing all kinds of higher education. Scholarship awards can be used for accredited colleges and universities for undergraduate (both 2- and 4-year) and graduate programs, as well as trade, technical, and vocational schools. Institutions must be located in the U.S., and scholarship recipients must be in good academic standing per their schools’ guidelines.

The scholarship aims to support deserving siblings in families affected by Rett syndrome who need financial assistance to pursue educational goals. The independent review committee will consider a variety of factors in their selection, including academic performance, school and community activities, family and personal circumstances, financial need, and the applicant’s essay.

The topic of this year’s essay is “write a letter to your sibling telling them how they have influenced the way you look at the world and the path you are choosing to take in life.”

No. Acadia sponsors the Rett Sibling Scholarship and funds the awards but has no involvement in review or selection. To ensure complete impartiality and maintain a high level of professionalism, the program is administered by International Scholarship and Tuition Services (ISTS), Inc., a firm that specializes in managing sponsored scholarship programs. Applications are reviewed and recipients selected by an independent review committee.

Scholarship recipients are notified in April and then have 30 days to accept (or they forfeit the award). Recipients will receive reminders of the acceptance deadline. Scholarship funds are issued as checks made out to the school and mailed directly to each award recipient; it is the recipient’s responsibility to submit the check to their school.

For more helpful information about scholarships plus answers to common inquiries related to ISTS’s technology and processes, visit our Self-Help Portal at ISTSprogramsupport.com. You may also call toll free (855) 670-ISTS (4787). ISTS offices are open Monday through Friday from 8:00 AM to 5:00 PM CT. 

Resources

Rett Sibling Scholarship FAQ (PDF) 

Rett Sibling Scholarship postcard (PDF) 

Get Updates 

For more helpful information about scholarships plus answers to common inquiries related to ISTS’s technology and processes, visit our Self-Help Portal at ISTSprogramsupport.com. You may also call toll free (855) 670-ISTS (4787). ISTS offices are open Monday through Friday from 8:00 AM to 5:00 PM CT. 

Get Updates

Sign up to receive emails about Rett syndrome community resources, news, services and programs that Acadia Pharmaceuticals offers or sponsors.

I am a*

By clicking “Submit,” I understand and agree to the Privacy Policy and Terms & Conditions. I agree to receive communications from Acadia Pharmaceuticals Inc.