Yours, Truly Has Stories to Tell: Living With Parkinson’s

Beautiful, personal, heartfelt – this describes the conversations from Yours, Truly, a national, multicultural, storytelling campaign that shares the stories of moms, dads, spouses and other people with Parkinson’s disease as told by their families and caregivers. Established in 2021 to bring greater awareness and understanding of Parkinson’s disease (PD), Yours, Truly is a collaboration between Acadia and StoryCorps, featuring content in Spanish and English.

The stories on Yours, Truly elevate the realities of life lived with Parkinson’s disease while helping to reduce the stigma associated with its non-motor symptoms, including hallucinations and delusions that are experienced by half of Parkinson’s patients. Available at yourstrulypdp.com, the website also provides access to bilingual educational resources from advocacy organizations across the U.S. The stories are thoughtful and sincere, bringing important voices and viewpoints about the journey to others.

In 2022, Yours, Truly will travel with the StoryCorps’ MobileBooth (an Airstream trailer that crisscrosses the country year-round) to welcome more families to record, share and archive their personal stories.

At Acadia, we aspire to enable brighter moments for patients and their loved ones. By preserving and amplifying the voices of those impacted by PD, we can empower these patients and their caregivers to shine through.

Yours, Truly ensures that the varied experiences of the Parkinson’s disease community will be preserved for generations to come.

Do you have a story to share about someone living with non-motor symptoms related to Parkinson’s, including hallucinations and delusions? Share it here.