Sharing Unique Moments During Rett Syndrome Awareness Month

During Rett Syndrome Awareness Month in October, visit RettRevealed.com, a new awareness campaign that highlights the lives of Rett patients through a photo mosaic designed by Emily Shifflet, a 27-year-old eye-gaze artist living with Rett syndrome.

Just as every person impacted by Rett syndrome is different, so too is their experience. Whether living with Rett, caring for a loved one, or advocating on behalf of the greater community, every journey is made up of its own unique moments. Rett syndrome is a rare genetic neurodevelopmental disorder that affects the way the brain develops, causing a progressive loss of motor skills and speech. Rett is not widely known, but you can help raise awareness about it this October during Rett Syndrome Awareness Month.

We invite you to visit RettRevealed.com to upload a photo of your unique moment or experience with Rett. It may be a photo that brings you joy, a family adventure, or a photo of you raising awareness. Follow along throughout the month as the submitted photos come together to reveal a unique mosaic based on art created by Emily Shifflet, a 27-year-old artist living with Rett.

Using eye tracking and eye control software to paint her designs, Emily came to art as a young adult when digital painter software was installed on her communications device. Since then, art has played an essential part in her life, enabling her to express her creativity in spite of physical limitations. To learn more about Emily’s remarkable life as a young artist, please visit her website: EyeGazeDesignsByEmily.com.

At Acadia, we are dedicated to fighting diseases like Rett syndrome to help brighter moments shine through for patients and their loved ones. Our strong connections in the Rett syndrome community include supporting organizations such as the International Rett Syndrome Foundation and Child Neurology Foundation, participating in community events to improve awareness and understanding of Rett syndrome, and establishing the Rett Parents Council to listen and learn directly from parents of children with Rett syndrome.

To participate in Rett Revealed, visit RettRevealed.com. To learn more about Emily’s remarkable life as a young artist, please visit her website, www.EyeGazeDesignsByEmily.com