- October 9, 2024
- Acadia Story
October marks Rett Syndrome Awareness Month, and at Acadia, our commitment to the Rett community goes beyond words—it’s about action. Throughout this month, explore all the ways Acadians are showing up for Rett and how you can get involved!
We work to shine a light on the unique experiences of those impacted by Rett syndrome. Whether through our disease education programs, connecting with the community at advocacy events or sharing powerful Rett syndrome stories, we continue to learn from these meaningful relationships so we can better serve the Rett syndrome community. This month, we are grateful for the opportunity to take part in a number of activities to mark Rett Syndrome Awareness Month.
Acadia Goes on the Road for Advocacy Events
Acadians are packing their bags and hitting the road across the country to help raise awareness for Rett syndrome by participating in local events all month long:
- IRSF Strollathons:
- 10/5: Lincroft, NJ
- 10/5: Silver Spring, MD
- 10/6: Savage, MN
- 10/6: Philadelphia, PA
- 10/19: Salmon, ID
- 10/19: St. Louis, MO
- 10/26: Southern California (Whittier, CA)
- 10/27: Dallas, TX
- 11/4: West Melbourne, FL
- 10/6: Rocky Mountain Rett Association Roll 4 Rett (Littleton, CO)
- 10/11:Camp Rett U Weekend (Scottsville, KY)
- 10/12: Rett Family Day (Deer Valley, UT)
- 10/13: ISPE International Society of Pharm Engineers 2024 Annual Meeting & Expo (Orlando, FL)
- 10/14: On the Ridge for Rett Golf Scramble (Lenexa, KS)
- 10/19: Rett Family Skating Day (Las Vegas, NV)
- 10/19: Blue Sky Day (Boston, MA)
- 10/20: NORD Breakthrough Summit (Washington, DC)
- 10/21: IRSF Leadership Meeting (San Diego, CA)
- 10/23: 2024 BIO’s Patient Health & Advocacy Summit (Washington, DC)
- 10/25: RETT Syndrome: Fall Festival on Ridgebury Farms for Families (Ridgefield, CT)
- 10/27: RSRT Reverse Rett San Francisco (San Francisco, CA)
To keep track of where our Acadia team is showing up next, or when we’ll be at a Rett event near you, keep an eye out on our Acadia Facebook, Instagram and LinkedIn for the latest updates. We hope to see you on the road!
Magnolia’s Guide to Adventuring: Showcasing the Unique Abilities of those Living with Rett
Earlier this year, it was “lights, camera, action!” for Magnolia’s Guide to Adventuring docuseries created by AJ and Jenny Tesler, and featuring their daughter Magnolia (“Maggie”). The series follows the Teslers as they are joined by other Rett families to experience adaptive sports, such as downhill skiing, ice skating, horseback riding, and water skiing. The uplifting docuseries focuses on what those living with Rett syndrome CAN DO, and not what they can’t, challenging the assumptions about people living with this rare, complex neurodevelopmental disorder. Join us for the 10th and final episode of the season where the Tesler and Alvarado families grab their paddles to take on this exciting adventure!
To watch all the episodes, visit https://www.rettrevealed.com/adventuring-with-magnolia/.
Acadia’s Rett Sibling Scholarship Continues to Celebrate Unsung Heros
Last year, Acadia announced the establishment of the Rett Sibling Scholarship sponsored by the company to shine a light on the impact of Rett syndrome on Rett siblings. Now in its second year, we are happy to be awarding 10 Rett Sibling scholarships of $5,000 to eligible siblings of individuals living with Rett syndrome for the 2025-2026 academic school year. Applications are open until January 30, 2025—don’t miss this opportunity to recognize the strength of siblings in the Rett community! To learn more about the scholarship, who is eligible and how to apply, visit Rett Sibling Scholarship.
Helping to Educate about Rett Syndrome
In addition to showing up, we also know it’s important to help educate people about this condition, including contributing to ongoing Rett syndrome research. Follow our Acadia Facebook, Instagram and LinkedIn channels to learn more about:
- Our data presentations at the World Rett Syndrome Congress on October 2-5 in Gold Coast, Australia, and the International Conference on Neurology and Brain Disorders October 21-23 in Baltimore, MD
- Educational resources available on RettRevealed.com
- “Purple Out” and how you can participate
- Key updates from Rett advocacy groups
Join us in celebrating Rett Awareness Month by following on social media for updates and connecting with the community this October!
