Lucy, a 14-year-old living with Rett syndrome, and her parents, Matthew and Anna, share their journey. It is a story of joy and hope, of strength and dedication, but mostly it is a story of love.
Matthew and Anna have worked tirelessly to surround Lucy with an enriched environment that includes a community of educators, therapists and others who share their commitment to help Lucy “be the best Lucy she can be.” Their resolve has taken Lucy to high school, mountain-climbing, skiing, horseback-riding – experiences any child might have.
Rett Stories: Lucy
Every time we see her do things like this, our world has opened up what’s possible. We don’t know what comes next…but her spirit is limitless.